In the early days of Beyond Celiac, we focused on meeting the day-to-day needs of people with celiac disease: access to gluten-free food, celiac education for medical providers, and awareness of the condition’s serious effects.
Over time, we recognized the significant need and opportunity to develop solutions for celiac disease, a challenge that had not yet been addressed. Determinedly, we committed to leading the effort for treatments and a cure.
The blend of these two objectives—supporting day-to-day needs and pushing for scientific discovery—is how we arrived at one of our guiding mottos: care today, cure tomorrow. We know that treatments and a cure must happen for people with celiac disease to truly live healthy lives. While we strive for that ultimate goal, we understand our community needs resources to understand their diagnosis and how to navigate a world that often does not understand it.
Thanks to the generosity of people like you, we provide a robust set of educational resources and tools, and we get closer to a cure every day. Please consider adding your support today to continue to drive these goals forward.
At BeyondCeliac.org, you can find a list of celiac disease centers and programs in the United States, hundreds of gluten-free recipes, a symptom checklist for those who may have celiac disease, information about how best to talk with family members about their risk for developing celiac disease, and an ever-growing resource library for anything in between, including a restaurant card, infographics, and a “myth-busters” sheet.
If you’re celebrating Thanksgiving this month and need recipe ideas, I encourage you to check out our Holiday Feasts page or download our Savor the Holidays e-cookbook.
In October, we co-hosted the 2024 Beyond Celiac Research Summit with the Children’s Hospital of Philadelphia. The Summit showcased current research funded by Beyond Celiac, featuring presentations from scientists such as Sónia Gonçalves Pereira, PhD, who is studying how the microbiome affects the development and progression of celiac disease, and Michael Fitzpatrick, MD, who is exploring new methods for monitoring celiac disease beyond the standard blood tests. The event also highlighted the work of many dedicated scientists, doctors, and academics.
The Summit celebrated advancements in translational research aimed at finding a cure. In addition to the Beyond Celiac Investments venture philanthropy program, we are focused on clinical trial recruitment and evidence-generation projects such as the Diversity and Healthcare Equity Initiative and the Go Beyond Celiac patient registry. Together, these efforts form our comprehensive four-pronged scientific plan that addresses the pursuit of a cure from multiple angles.
The celiac disease community deserves quality care both now and in the future. Current patients should receive timely diagnoses, safe, affordable, and accessible food options, as well as understanding from their loved ones.
The gluten-free diet alone isn’t enough, and a significant portion of our community isn’t getting better on the diet. We need options to prevent further damage and heal the intestines. It’s essential to have a treatment that addresses the sickness when the gluten-free diet does not work. Ultimately, we need a cure. Together, we are going to get it!
We will continue striving toward a day when these needs become our reality. Until then, we are here for you with resources and answers to the questions you need to stay healthy now.
Together for a cure,
—Alice Bast, CEO
This is a tasty gluten-free side for Thanksgiving or any warm, hearty meal. Pair it with chili, barbecue, or fried chicken. It can even be a homely dessert if served with the honey butter recipe included on the same page. Enjoy!
Enjoy a gluten-free apple crumble without gluten or oats! This delectable dessert is undoubtedly easier than pie, but still has plenty of sugar, spice, and everything nice.
This recipe was provided by our friends at Gluten-Free Palate.
People with celiac disease are expected to recover after six months to a year on the gluten-free diet. But not everyone does—those who do not exhibit healing even after months or even years on a gluten-free diet are diagnosed with what type of celiac disease?
Those who do not exhibit healing even after months or even years on a gluten-free diet are diagnosed with either non-responsive celiac disease or refractory celiac disease.
Special issue of AGA journal highlights progress in celiac disease
Beyond Celiac and the American Gastroenterological Associate partnered to bring important updates in celiac disease research, management and more to patients through patient-friendly summaries of recent articles published by AGA.
Read more research news on our Research News Feed
This survey intends to provide greater clarity on the experiences that people with celiac disease have when exposed to gluten, including the top symptoms with a negative impact and how symptoms and gluten exposure negatively impact quality of life.
If you’re signed up for Go Beyond Celiac, we invite you to log in and complete this survey. If you haven’t already joined, please become a member of Go Beyond Celiac and start sharing your story today.
Learn more about Go Beyond Celiac
“[I’m grateful] for all the medical people who work so hard to figure this all out, and for the advances made thus far.
It changed my life to have the diagnosis, and to find out I wasn’t just an anomaly! I encourage anyone to seek out as many doctors, diagnoses, and tests as possible until a specific, scientific and reasonable conclusion is found, for any medical mystery you might be having. I have learned the importance of advocating for myself.”
When Family Doesn’t Get Your Child’s Food Allergies
With food allergies, a steep learning curve with relatives turns out to be a common issue. When Allergic Living asked readers about their experiences with extended family, many spoke of frustrating times trying to impart the care and caution needed to avoid accidental allergen exposures. Read this article to hear how some families are tackling the issue.
Get Gluten-Free Recipes for Thanksgiving
The holiday season is in full swing! Need gluten-free recipe ideas? Check out our Holiday Feasts page, download our Savor the Holidays e-cookbook, or simply search the recipe section of our website for your dream recipe! Any recipe on our website is gluten-free, but be sure to review the ingredients list on any product you buy to ensure it’s safely gluten-free.
Raise Money for Beyond Celiac on Facebook!
Happy birth-month to all our November-born community members! When your big day rolls around, consider raising money for Beyond Celiac so that we can help fund new research by scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years! These fundraisers help make our important work possible.
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