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Letter from Alice: The Heart of Beyond Celiac is You!
Happy February! Most people associate this month with romantic love, but we want to celebrate a different kind of love: our love for our community!
Beyond Celiac is a 501(c)3 nonprofit organization. As such, we could not exist without the support from the celiac disease and non-celiac gluten-free community. YOU are the heart of this organization.
With your help, we have accomplished amazing things throughout the years. For example, Beyond Celiac earned unprecedented funding from the NIH to develop materials to raise awareness, researched gluten in medications with funding from the FDA and illuminated the symptom of brain fog as a serious concern for our community that was largely overlooked. Together, we have increased the rate of diagnosis from 3% to as high as an estimated 50% in under 20 years; we’ve increased the availability and affordability of safe, gluten-free food on store shelves; increased the number of restaurants trained in gluten-free food handling procedures; educated doctors and pharmacists about celiac disease; distributed thousands of Getting Started guides; and now have set our sights on accelerating research via grants, clinical trial recruitment, the Go Beyond Celiac patient registry and more. These efforts will get us to treatments toward a cure by 2030.
It’s incredible what we can accomplish together, right? It’s even more astounding when I think back to where we first launched this organization in 2003. It was just our director of administration Nancy Ginter and me working from a spare room in my home. It is with your support that we have accomplished this much.
That’s why I so firmly believe in our collective ability to bring a cure or treatment to the community. Look at everything we have accomplished in less than twenty years! Frankly, getting a treatment isn’t a matter of if but when. Just take a look at all the clinical trials in progress on our drug pipeline page.
If you want to be a part of this massive movement, you can donate, learn more about supporting clinical trials, sign up to be a volunteer, or join Go Beyond Celiac and share your experiences with researchers. Other ways to help include starting a Facebook Fundraiser for Beyond Celiac, sharing our social media posts to spread the word, and attending events, such as our Step Beyond Celiac 5Ks and Town Halls. You can also join our Celiac Champions program, a community of our most dedicated donors, who support our work with sustaining monthly gifts.
With your continued support, we WILL beat this disease.
Together for a cure,
Alice Bast
