To that end, the goals of the coalition are as follows:
The Coalition has identified two priority projects for 2023-2024.
The Coalition’s unique composition and pre-competitive nature lends itself well to hosting a bi-annual meeting among stakeholders committed to accelerating a cure for celiac disease. Primary objectives would be the following:
We are proud to report that in May of 2024 the Beyond Celiac Coalition met with the FDA to discuss a collaborative approach to making therapeutic trials for celiac disease more patient-centric while maintaining scientific rigor. Read more about our meeting with the FDA.
Since 2003, Beyond Celiac has been the leading patient advocacy and research-driven celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.
Now, Beyond Celiac has brought together members of academia, key opinion leaders, government agencies, and pharmaceutical, biotech and diagnostic companies to identify and address significant roadblocks to the diagnosis and treatment of celiac disease.
Our Coalition structure includes an Executive Board to set the vision, strategic priorities and oversee the use of funds, plus a Steering Committee to provide recommendations on project priorities and plans. The Beyond Celiac Coalition is operated and funded by annual membership dues, with projects funded from supplemental funds members provide. Membership benefits include seats on the Executive Board and/or Steering Committee. Participation in project funding is based on the discretion of each potential project participant, with project funding opportunities offered to all members.
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