December 2020
December 8, 2020
Note from Alice: What a Year! We’re Still Here…Together for a Cure!
2020 has been a year of significant challenges for each of us, our families and our communities. Thankfully, an end to the pandemic is potentially in sight as scientists and pharmaceutical companies complete their efforts to produce multiple effective COVID-19 vaccines. Nothing can be more transformative than scientific discovery.
While this critical work nears completion, you have also supported other important scientific progress to move us closer to the post-pandemic world we all want — one in which we can live healthy lives, free from social stigma and fear of gluten exposure. And so, in a year that at times seemed to have come to a standstill, we should celebrate the ways we’ve all moved forward together at Beyond Celiac during this season thanks to your help in funding the following outcomes:
- COVID-19 Resource Hub – As soon as the pandemic hit, our science team began providing updated evidence-based information and guidance about the novel coronavirus and how it affects our community. Your responses to a new survey about COVID-19 and celiac disease helped us learn directly from you and share results about the impact of the health crisis on families coping with celiac disease.
- Student Intern Council — With schools closed and many service jobs on hiatus, young people were doubly hit with the impact of COVID-19, so a generous donor helped us create the Student Intern Council to engage younger members of our community and gain new insight and perspective into our programs.
- NMQF Partnership — We have formed a partnership with the National Minority Quality Forum to unearth and address health disparities across multiple populations in celiac disease diagnosis and treatment.
- Clinical Trial Recruitment — This year, despite COVID-19, many of you have considered participating in clinical trials to move celiac disease treatments forward. As the primary nonprofit organization leading clinical trial recruitment for celiac disease studies, Beyond Celiac was named the exclusive nonprofit partner for the only Phase 3 celiac disease clinical trial to date.
- A Virtual Evening Beyond Celiac – Participants from every state in the union joined us for the biggest night in celiac disease of the year with a virtual night of science and fun, featuring world-renowned performers and key discussions with scientists about driving treatments toward a cure for celiac disease over the next decade.
- Expanded Our Science Team — We stepped up our scientific efforts by adding two innovative leaders to our organization, Salvatore (Salvo) Alesci, MD, PhD, as Chief Scientist and Strategy Officer (CSSO) and Ken Kilgore, PhD, MBA, as Chief Scientific Investment Officer (CSIO).
Together (apart) for a cure,
Give to Celiac Disease Research & Advocacy Programs
Give today to our End-of-Year Campaign to accelerate research for treatments and a cure for celiac disease.
2020 has been a challenging year. Yet, due to the transformative support of donors like YOU, we are able to continue our mission with urgency and determination.
We have partnered with National Minority Quality Forum (NMQF) to address healthcare disparities in celiac disease. This research and educational organization is dedicated to ensuring that high-risk racial and ethnic populations and communities receive optimal health care.
To help facilitate projects like this that make life better for the entire celiac disease community and bring us closer to treatments and a cure, please consider giving today.
DONATE NOW
Become a Beyond Celiac Ambassador
The Reach Beyond Celiac Ambassador Program will empower the celiac community by providing outlets to share their experiences, spread positivity and create change in their communities.
Ambassadors will be able to tailor the program to their unique passions and skills – using tools and resources provided by Beyond Celiac. Ambassadors will work both independently and collaboratively on initiatives designed to drive Beyond Celiac’s mission forward. The work will be engaging and have significant social impact while building leadership, strategic planning, collaboration and other skills. If you are energetic, intelligent, and full of big ideas…and you want to make a difference in the world…please apply today!
Learn More and Apply
Gluten-Free Cooking with Oonagh
Maple Pecan Bars
Who doesn’t enjoy gluten-free sweets around the holidays? Try this simple recipe! You wont be disappointed.
Smoked Salmon and Cucumber with a Sweet Mustard Dill Sauce
An easy, elegant looking appetizer that can be made in advance and is often very popular!
About Chef Oonagh Williams
Oonagh Williams holds a culinary arts degree and spends her time cooking and educating the public on gluten- and allergy-free diets. She herself has celiac disease and food allergies. She teaches cooking classes, hosts dinner parties, and offers one-on-one help. Buy her Delicious Gluten-Free Cooking e-book and connect with her on Facebook.
Clinical Trials
CeDLara Study
Still experiencing symptoms on a gluten-free diet? The CeDLara Study is currently enrolling qualified patients into their phase 3 study to assess a potential therapy for celiac disease. This study is being conducted to determine if the drug reduces symptoms of celiac disease in patients who are on a gluten-free diet. You may qualify to participate in this study if you:
- Are 18 years old or older
- Are biopsy diagnosed with celiac disease
- Are actively experiencing symptoms related to celiac disease such as abdominal pain, abdominal cramping, bloating or gas
- Have been on a gluten-free diet for at least 6 months
Learn More
PROACTIVE Study
Are you still experiencing celiac disease symptoms despite your best efforts to follow a gluten-free diet?
The PROACTIVE Celiac Study is looking for people between the ages of 18 and 70, who have biopsy-confirmed celiac disease and have been on a gluten-free diet for at least the last 12 months. You will not be asked to ingest gluten in this study. The goal of this phase 2 clinical trial is to test the safety and effects of the investigational medication PRV-015. In combination with a gluten-free diet, PRV-015 aims to reduce symptoms and intestinal inflammation caused by accidental gluten exposure.
Learn More
See if You Qualify
Use referral code: REFBC
Solutions for Celiac Study
The Solutions for Celiac study is researching a drink-based study medication and its ability to reduce symptoms of accidental gluten exposure. Latiglutenase is a study medication designed to break down gluten into inactive pieces in the stomach to protect people with celiac disease. No uncomfortable biopsies or injections.
Locations: Chattanooga, TN | New York, NY | Chesterfield, MI | Rochester, MN
Learn More
Allergic Living Spotlight
Holiday E-Magazine
In their Holiday e-magazine, Allergic Living hears from food allergy moms who show phenomenal creativity. They share how to make “home for the holidays” a magical time, despite the pandemic. This e-magazine brims with allergy-friendly inventions – from holiday tours to PJ parties, side-dish dinners, family book nights and ultimate Zoom special occasions.
News, Events & Updates
Raise Money for Beyond Celiac on Facebook!
Happy birth-month to all our December-born community members! When your big day rolls around, consider “donating” it to Beyond Celiac so that we can help fund new research scientists in the celiac disease field. And a HUGE thank you to everyone who’s created fundraisers for us throughout the years!
Special Year-End Giving Message from a Donor
Inspired by Warren Buffet, one of our most generous donors shared the message below with me to pass on to supporters like you who share a passion for our goal of driving a cure for celiac disease by 2030.
