Beyond Celiac original research accepted for presentation at DDW

Analysis of health insurance claims reveal delays in diagnosis even when risk for celiac disease is high

By Amy Ratner, director of scientific affairs

A study based on Beyond Celiac original research will be presented at Digestive Disease Week 2025 (DDW) in San Diego in May.

The study details a delay in celiac disease diagnosis even when patients have conditions that indicate a high risk for celiac disease. This research is based on analysis of a database of private payer health insurance claims.

DDW is the largest international gathering of physicians, researchers and academics in the fields of gastroenterology, hepatology, endoscopy and gastrointestinal surgery.

This is fifth time and the fourth consecutive year Beyond Celiac research will be presented as a poster at DDW.

The study, “Delay in celiac disease diagnosis among patients with high-risk screening conditions: results from a United States claims database,” is being presented by Haley Zylberberg, MD, of Weil Cornell Medicine. Zylberberg collaborated with Beyond Celiac on this study as well as a previous study presented at DDW in 2022.

“This study investigates delays in diagnosis even when there are clear indications that someone should be tested for celiac disease,” said Debra Silberg, MD, Beyond Celiac chief scientific officer. “Beyond Celiac, through this research, brings into focus the challenges someone faces even as they struggle with celiac disease symptoms.”

Additionally, Beyond Celiac original research related to neurological symptoms of celiac disease will be presented in San Diego in April at the annual meeting of the American Academy of Neurology. The study, “Frequency and severity of neurological symptoms following gluten exposure in individuals with celiac disease,” will be presented as a poster by Erin Miller, Beyond Celiac assistant director of research and health equity programs.

The study is based on a survey of more than 3,000 people with celiac disease in the Go Beyond Celiac patient registry regarding symptoms they have after inadvertently being exposed to gluten.