Collecting patient stories to advance research
Beyond Celiac created the Go Beyond Celiac research database to collect self-reported data to learn more about life with celiac disease and help researchers better understand this serious genetic autoimmune disease.
Because celiac disease research is underfunded, Beyond Celiac has crafted a plan and begun offering grants to help fund the most promising celiac disease research.
Patient participation in research is critical to developing treatments and a cure for celiac disease. Because of this, Beyond Celiac has begun helping pharmaceutical companies find appropriate patients for their studies. Since 2016, Beyond Celiac has successfully recruited patients for a number of clinical trials and was named the exclusive patient organization to recruit for the first-ever Phase 3 Clinical Trial for celiac disease.
A study funded by a Beyond Celiac grant shows how much celiac disease patients and those who have gluten sensitivity worry about gluten in drugs.
Comparing celiac disease management at centers vs. community settings
Beyond Celiac examined the difference working with an experienced celiac disease specialist makes in the lives of people living with the condition.
Offering continuing education on the impact and barriers to diagnosis
Beyond Celiac offered a continuing medical education program for medical professionals, designed to educate them on all aspects of celiac disease. Following the program, Beyond Celiac evaluated the results and the program’s impact on the celiac disease community.
Researching the neurocognitive effects of gluten exposure patients worry about gluten in medications
Beyond Celiac researched the phenomenon known as “brain fog” by the celiac disease community to better understand how it affects people with this serious genetic autoimmune disease.
Comparing the use of disease symptoms checklist in self-initiated diagnoses of celiac disease and non-celiac gluten sensitivity
Beyond Celiac research discovered more people are likely to seek a celiac disease test rather than it being first suggested by their doctor.
Beyond Celiac partnered with the National Minority Quality Forum (NMQF) to target inequalities in celiac disease diagnosis and treatment.
